Lyme Disease- Australia

[alana]

I am urgently seeking someone who can help me. My partner has been ill for some months now...he was admitted to hospital, seen several doctors and had ALOT of blood test. His symptoms are exactly what is given for Lyme....he is a cattle truck driver who also is around dogs, kangaroos, pigs, dogs etc daily. He did receive one blood test back positive for Leptospirosis, but on further testing it came back negative.

Symptoms include-
Headaches all the time (and this is someone who never ever had one)
muscle and joint pain (to the point of not being able to get out of bed)
stiff neck (he holds the same spot every time- ends up crying in pain for hours- hitting his own head with fist, saying he wants to cut it open to release pressure etc)
swollen glands
fevers-chills
sore throat
fatigue (spending days at a time in bed)
mood swings (unable to remember outburst of rage- holes in walls, screaming, yelling - that has never happened before this illness )
depression / anxiety
ear pain
heartburn / chest pain
constipation
heart racing (have actually called the ambulance in middle of night and taken to hospital)
unable to remember small everyday things / concentration
I have seen him chuck a coke can on ground and he went to squash with his foot and clean missed it- twice, by inches

Last week I started him on the vitamin c - salt...since then he has shown improvement and reacted exactly how a Lyme patient would on the treatment...we do not know where to go from here. I have photos of small white strings (feathery) coming from his skin on his side under his arm. He also has sores in his head and when he goes to the toilet there are small whiteish, with bigger browner head type small worms. This has began since he began the vit c / salt. Anyone who can help please contact me as I am quite concerned for his health and our family. Thank you

[sasha]

Hi Alana

I have had Lymes disease since xmas after getting bitten by a tick in northern NSW. Long story short, no one would diagnose me with LYmes, testing came back inconclusive first time and negative next. After internet research I was convinced I had lymes, and demanded to be put on Doxycycline antibodies for 6 weeks...I slowly started to feel better. I was getting at least 5 new weird symptoms daily, alone with everything your partner has...you seriously feel like you are going nuts and on a heavy drug trip. PLEASE demand to go on this course of antibodies, because he is only going to get worse and it takes so much longer to get better if you dont start straight away. Doctors have no idea about it and are so skeptical, the testing in Aust is terrible and will come back negative. I went to an infectious disease specialist and he told me it was all my head....arrrrrggghhh!!After nearly 5 months I am only just starting to feel better, it is so frustrating what he is going through, I have been there. I started going to a naturpath who kills the Lymes off with this frequency machine 4 weeks ago and the difference is amazing I have improved from feeling 10% normal to 90% normal again. I am based in Brisbane, so let me know where you are and I will see who has this machine near you. She tested me against these different vials of infections and Lymes went off the rickter scale...it sounds all really weird and I was really skeptical, but the way I feel now speaks for itself. How long has he had it for??? I hope I have helped, and I know how frustrating and horrible it would be for you both....I felt like I had no life, it was terrible!!

Cheers, Sasha

[marie]

i also am wondering if i have lyme disease.... i was bitten by a tick 3 years ago i was 20 now i am 23. I have been researching on the net about lyme disease and on one webpage it states that the 3rd stage of lymes symptoms can occure weeks,months or even years after infection in patients who either never received antibiotic treatment for early lyme disease or whose treatment did not kill all of the bacteria.

i have started to get ill in early march this year with all these symtoms all coming at once which didnt make sense to me. all last year i felt funny and lethargic but i didnt have any evidence to take to the doctors to say i was ill so i brushed it off(thinking i was just had a poor diet).

the major problems started in march with my eyes going funny heart pulpitations fatigue muscle pain difficulty concentrating fogy brain tingling in the arm and leg. its been nearly 6 months now and all the blood tests and eye secialist and heart specialist and a health speicalist saying i have a panic attack problem its all in my head... and im still not getting any better my local doctor just told me give it time its prob just a virus of some sort....

i dont know what to do anymore and i would love to find a doctor who believes in lyme so i can get tested to see if i have it or not. i am going for a mri scan to see if i have MS (Multiple Sclerosis) my doctor thinks my symptoms are close to it but also if you type in symptoms similar to mson the net, lyme disease comes into the category.can someone please help!

[Anitazzz]

About 18 months ago I moved to Sydney's Northern Beaches and over the next 9 months or so I received a number of tick bites which produced increasingly bad reactions. I would get terrible headaches (worse that I'd ever experienced),vomiting, body aches, rashes and swelling. Over the following months I continued to have terrible night sweats and always felt itchy and as though I had things crawling over my skin. My finger joints became swollen and I started to have serious pain in my knees, shoulders and spine, very painful night cramps in my feet, as well as extreme fatigue, insomnia and depression.

I believed that I contracted Lyme disease and after initial blood tests was told I possibly was suffering from Lupus. Further blood tests said this wasn't the case and the Lyme disease test also came up negative. However, a Rheumatoligst I saw claimed that the tests in Australia are more applicable to the Northern Hemisphere and therefore not reliable. He said that I had developed reactive arthritis and his advice was that I go on long term antibiotics and steroids as there is no "cure". I did a short course of antibiotics but wasn't prepared to do them indefinitely.

I decided to research the problem and started on the sea salt cure. I could only stomach it for a few days but felt an immediate effect in relation to the skin problem and my finger joints. I also did a detox treatment which made me really sick (the waste from the bacteria from the Lyme disease overloads your liver), took grapefruit seed extract and gave myself a couple of dry body scrubs followed by baths in sea salt and epsom salts. The itching has completely disappeared after months of bothering me to the verge of insanity!I believe that I had also contracted skin parasites via the ticks.

I am now taking MMS while slowly increasing the dose and watching my pH levels and although I still suffer from joint pain, my energy level is far better, I know longer have cramping, I sleep well and I believe that with time and by following the MMS protocol I will return to good health.

There are many websites dedicated to combating the effects of Lyme disease and it is certainly worth following their advice.

[togbabe]

This sounds very distressing. Has anybody here actually found a doctor in Australia who will take this seriously and actually test properly for it?

[marie]

i am trying to find a doctor who believes and its not working...... i did get the basic lymes seroligy testing done on me which came back negative but also without the proper testing you are not going to get the right reading.if im correct i think i got the elisa test which is sooo not accurate, with what i have been reading on the net. if someone out there does find a doctor that will test them go for the western blot test if it exsists here.... i dont know much but i am still searching...i have read up there are 2 hospitals in sydney and 1 in melbourne that have the labs for testing (i am in brisbane)

just wondering, if my iron has been a little low for the last 4 years (use iron tablets to bring me back up) and i was borderline b12 earlier this year (6 booster shots later back to normal) can i maybe have something else wrong with me.... my doc is now testing me for celiac disease. i dont think i have that but i will give the test a go.... i still have all the other symtoms its all a little too confusing

joint pain,muscle pain/cramp,vision changes, spots before eyes,eye floaters,sore eyes,light sensitvity,fatigue,tiredness,upset stomach,heart pulpitaions,,buzzing in the ear (when in quiet room),poor short term memory,forgetfullness,difficulty with concentration/reading and thinking,wooziness,body tingling. and other stuff i cant think of at the moment

most which fit into lymes but then again so many other disease and illnesses out there..... anyone have any ideas